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Well the foot specialist pronounced that I had Charcot's foot. He took another series of xrays and noted additional deteroriation of the navicular bone since the set taken last week!
I am off the foot, for the next 3 – 6 months. And have a TLC, turning leg caddy to place my knee on when walking. It looks like a 4 wheel Razor skate board with a place to plant your knee. Also wearing the knee high “Darth Vadar” boot.
Start physical therapy that includes Anodyne treatments, tomorrow…
The silver lining today was the Colchicine delivery from Medco! Not that I need it at this time, but 180 tabs will last me a good long time!
They are the West-Ward 201 flavored brand.
Thanks to all! I'll keep spreading the news about GoutPal.com. It's great to go into an specialists office with more knowledge than his typical patient, and have handouts for him!
Thanks Zip!
I am hopeful that the appointment on Monday with an Orthopedic surgeon may pinpoint the reason for the swelling, and discomfort.
I am also hoping for a non-sugical solution!
I'll follow up with a report.. the Reuhmatologist did suggest that that gout may play into the issue as well, but could not be certain.
Thanks again for your time and advice.
Hi Zip2play,
The Neuropathy appears to have been handed down from my father. The Neurologist who diagnosed the symptoms, could not determine the root cause.
I do like a beer once in awhile, so that may contribute.
Otherwise, everything else seems normal. Not diabetic…
Thanks for your contributions to this forum. I have spread the word about Gout Pal to all my new found friends in the medical field here in the Tampa Bay area!
ruff12two said:
Yeah, I'm going to have a sit down with the realtively new Dr. She is bright and probably would admit to not knowing everything…
We did to an initial blood test and the liver was reported as normal, and everything else in line.. I just can put my hands on that report!!! But the only thing out of whack was the tericyclydes?
Otherwise I passed the test!
I'm getting the sense that the home testing does have room for improvement, so figuring that this is the first major issue in 4 years… I'll just go for the blood test…
colchine is doing it's job, and I'm tolerating it pretty well. The swelling is decrasing but still not as quickly as it has in the past!
I found out yesterday that my swelling is not from gout. The Xrays point to “the abnormal appearance of the navicular bone is suspect for avascular necrosis of the Navicular bone ( Köhler's disease)… and other fragmentations… “
Since I am not diabetic, but do have neuropathy in both feet, I have an appointment with the Ortho Surgeon on Monday to plan a resolution.
The Rheumalogists who I am seeing, thought that there may have been a gout related inflamaiton that may have contributed to the fracture of one of the smaller bones in the ankle, and due to the neuropathy, I did not give it much attention. So over a period of time the bone died?
This opinion is from one of my cousins, who is a VP for an international drug manufacf:
Colchicine is an unapproved drug that was grandfathered in by the FDA as safe and effective. URL Pharma did the first actual clinical trials (costs lots of money) for the two conditions and got approval for their drug, Colchrys for these two conditions.
Colchrys is ONLY colchicine. Everything else on the market is a combination of colchicine and probenecid, so that's what you've probably been taking.
From the [email protected] site (http://www.accessdata.fda.gov/…../index.cfm) , if you enter colchicine, you can see the products and the companies. Currently, it looks like Watson, Ivax/Teva and Concord Labs are still making and marketing the dual product.
URL is the only firm approved for only colchicine.
I will continue to ask for her guidance as to how to deal with this, and who we can contact and demand some sense be made of the price point set by Pharma.
Thanks again for the sage advice.
The new Doc finally got a chance to review the blood word, drawn a week ago!
Uric acid level = 5.4
WBC = 5.9 ( whatever that is?)
Anyway, she's stumped, I now have an appt with a Rheumatologist tomorro AM…
She said that everything looks normal….?
Thanks again everyone!
Thanks,
I have increased the fruit and veggie intake, and have paid attention to the rest of the diet!
I finally got the blood test done, just waiting on the results to be made available to the Dr, and then her analysis…. This process just takes too long!
The symptoms remain the same, with no improvement! Not sure what else can be perscribed to reduce the swelling?
Again, thanks for the advice…
Thanks again for hanging in there with me on this zip2!
I found the analysis…
Not sure if it has any value?
Color Yellow
Appearance Clear
SP Grav U 1.015
Protien Negative
pH 5.5
Glu U, Ketone U, Bilirubin, Blood, Nitrite,U, Leu Est, all Negative.
Not sure if that tells you anything. The swelling is somewhat diminished this morning, tha ankle is still painfull, ( between doses of indomethacine! ).
So I guess I get another free day of sitting with my foot propped up, watching football, and the SpongeBob marathon!
Yeah, I'm going to have a sit down with the realtively new Dr. She is bright and probably would admit to not knowing everything…
We did to an initial blood test and the liver was reported as normal, and everything else in line.. I just can put my hands on that report!!! But the only thing out of whack was the tericyclydes?
Otherwise I passed the test!
I'm getting the sense that the home testing does have room for improvement, so figuring that this is the first major issue in 4 years… I'll just go for the blood test…
colchine is doing it's job, and I'm tolerating it pretty well. The swelling is decrasing but still not as quickly as it has in the past!
No offense taken, it's all good to recieve information from an experienced resource. I'm more than a little dissapointed in the Dr's that I have seen for the past few years, that have just continued the same scripts of alup and others without validation!
BTW.. the foot is shrinking! Not back to the size 13 3x wide… but improving!
I like the idea of a home test kit. Any way to test PH without a blood draw? That appears to be a critical factor as well.
Thanks again, and you can't hurt my feelings!
I've checked the test kit, and will consider ordering one.
I have never been advised to keep track of my UA levels!!! And I've been dealing with this for 15+ years…
I may take an extra allpurinol daily to see if that affects the issue. I don't have any adverse reaction to allpurinol. Never was advised that there may be any!
The off diet comments were more singular events, months ago, so should not have any bearing to this present condition.
It's just odd that I feel that I am treating it appropriately and the durn thing just does not get better!
But knowing my UA and PH could be a good place to start.
Looks like I'll get to deal with it over the weekend!
No samples were taken, and it was just my initial visit to this new dr. An appt was made to have blood drawn in the near future to establish my account.
I am interested in aquiring the ability to determine my UA and PH at home.
What is your advice or reccomendation?
I have had attacks over the years, but typically they take 24 hours to treat and disappear. And they have occured when I have gone off the diet and eaten the “wrong” things like snow crabs, and split pea soup!
This attack has been perplexing, because the hoof is noticeably swollen, not much pain, and just won't go away!
Thanks again for any guidance.
